Community Forum

Welcome!

Welcome to our community forums, full of support for people with epilepsy and their caregivers, including tons of advice and information on how to live a happy, healthy and productive life with epilepsy. Please register if you’d like to take part.

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Helping Children Understand Epilepsy Information for the Parent or Guardian

Epilepsy Government Agencies Centers for Disease Control and Prevention (CDC)

CDC, an agency of the U.S. Department of Health and Human Services, promotes health and quality of life by preventing and controlling disease, injury, and disability. Within CDC, the National Center for Chronic Disease Prevention and Health Promotion is charged with preventing death and disability from chronic diseases and with promoting maternal, infant, and adolescent health and healthy personal behaviors. 

The CDC epilepsy program, which is within this center, conducts epilepsy program activities in the areas of improving care, improving communication and combating stigma, self-management, surveillance and prevention research, increasing public awareness and knowledge, and strengthening partnerships. 

NATIONAL ENTER FOR PREVENTION HEALTH PROMOTION Centers for Disease

Control and Prevention

4770 Buford Highway

N.E., MS K51 Atlanta, GA 30341–3724 http://www.cdc.gov/epilepsy 

National Institute of Neurological Disorders and Stroke (NINDS)

NINDS is an agency of the U.S. Department of Health and Human Services and a component of the National Institutes of Health. It is the leading supporter of biomedical research on disorders of the brain and nervous system. 

National Institute of Neurological Disorders and National Institutes of Health

Building 31, Room 8A-06 Bethesda, MD 20892 http://www.ninds.nih.gov 

Health Resources and Services Administration HRSA is an agency of the U.S. Department of Health and Human Services. Its mission is to improve and expand access to quality health care for all, including people with epilepsy. 

Health Resources and Services Administration Maternal and Child Health Bureau Division of Services for Children with Integrated Services Branch, 18A-18 Rockville, MD 20857 http://www.hrsa.gov 

Non-Government Agencies Epilepsy Foundation (EF) EF is a national organization that conducts research and provides education, advocacy, and other services for people living with epilepsy. The Epilepsy Foundation Web site offers detailed information on all aspects of epilepsy as well as on Epilepsy Foundation’s programs and services, news, and publications. EF state affiliates provide services on the local level in many communities. Some EF affiliates have support groups specifically for parents. For a complete listing of state affiliates or to find the one closest to you, please contact the Epilepsy FOUNDATION 4351 Garden City Drive Landover, MD 20785

http://www.epilepsyfoundation.org 

Epilepsy Foundation eCommunities:  Epilepsy Foundation provides e-communities that allow for online chats and dialogue among common interest groups including parents of teens with epilepsy. For a listing of groups or to join a group, please visit:

http://www.epilepsyfoundation.org/ecommunities. 

Epilepsy Foundation Resource Library:  Epilepsy Foundation provides an extensive resource library on its Web site. All topics related to epilepsy including searches and information (for free or for a nominal fee to covering copying costs) are posted. 

Resources include EpilepsyUSA—Epilepsy Foundation’s bimonthly magazine and a good resource for finding out about advances in the medical and research fields, upcoming EF events, and the lives of people, including young people living with epilepsy. 

Epilepsy: Part of Your Life—Offers guidance on medical treatment and advice for living a healthy life, adjusting to epilepsy, reducing the frequency of seizures, and understanding associated feelings. Answers to Your Questions about Epilepsy—Written for teens. Includes answers to teens’ questions on why taking medicine on time are so important; the interactions and dangers of mixing medicine, drugs, and alcohol; and the use of birth control. Epilepsy: Questions and Answers about Seizure Disorders—Offers answers to questions about epilepsy, seizures, first aid, treatment, daily life, and the EF. Safety and Seizures: Tips for Living with Seizure Disorders—Reviews safety issues that may arise when seizures occur. Medicines for Epilepsy—discusses various types of Surgery for Epilepsy—Covers current surgical treatment 

American Epilepsy Society - This national society promotes research and education for professionals dedicated to the prevention, treatment, and cure of epilepsy. 

American Epilepsy Society

342 North Main Street West Hartford, CT 06117–2507

 http://www.aesnet.org 

National Association of Epilepsy Centers (NAEC) - The NAEC is a nonprofit trade association whose members include more than 60 specialized epilepsy centers across the United States. This association can help you find an epilepsy center close to your home. 

NATIONAL ASSOCIATION OF EPILEPSY

5775 Wayzata Boulevard Suite 200

Minneapolis, MN 55416

http://www.naecepilepsy.org