Community Forum

Welcome!

Welcome to our community forums, full of support for people with epilepsy and their caregivers, including tons of advice and information on how to live a happy, healthy and productive life with epilepsy. Please register if you’d like to take part.

Directions to Register:

  1. Registered? If you haven’t registered on our site yet as a user then click the register bottom below.  Create a user name and provide your email address to register.
  2. To log in: Provide your username and password and click the log in button.
  3. And that’s it! You’re now a member of the epilepsy community and you can participate in all our discussions.
You need to log in to create posts and topics.

Helpful Websites

Citizens United for Research in Epilepsy http://www.cureepilepsy.org 

Washington University at St. Louis Pediatric Epilepsy Center http://www.neuro.wustl.edu/epilepsy/pediatric/index.html 

Tufts University Child & Family Web Guide http://www.cfw.tufts.edu 

Epilepsy Web Ring for Parents http://www.kidsepilepsy.com Epilepsy.com—sponsored by the Epilepsy Project

Epilepsy Websites: 

  1. Epilepsy.com - Epilepsy and seizure diagnosis, treatment, and information for people with epilepsy.  http://www.epilepsy.com
  1. http://www.braintalk.org
    BrainTalk Communities: Online patient support groups for neurology (from Massachusetts General Hospital) -- a large and active site with separate forums for epilepsy and a very wide range of other disorders.
  1. http://www.cdc.gov/nccdphp/epilepsy/index.htm
    National Center for Chronic Disease Prevention and Health Promotion: A page dedicated to some general information on epilepsy.  The National Center for Chronic Disease Prevention also has a toolkit for parents of teens with epilepsy: http://www.cdc.gov/epilepsy/toolkit/index.htm
  1. http://www.columbia.edu
    a website for The IRELAND Project, based at Columbia University in New York.  The IRELAND Project is a multicenter genetic linkage analysis study designed to look for the genes that cause seizures in Rolandic Epilepsy and associated difficulties in reading and speech.
  1. http://www.emedicinehealth.com/
    a website specifically designed to address health issues such as epilepsy.  The site contains articles written by physicians for patients and consumers.
  1. http://www.epilepsycenter.com/
    The Epilepsy Center is an organization that provides services in northwestern Ohio. Features safety tips, posters for sale, and extensive links.
  1. http://www.epilepsyfoundation.org/
    Website of The Epilepsy Foundation, the U.S. national organization that works for people affected by seizures.  A good place to get reliable information, especially on legal affairs and community services.
  1. http://www.epilepsyinstitute.org
    the website of The Epilepsy Institute, a social-service organization for people with epilepsy in New York City and Westchester County, NY.
  1. http://www.epilepsytoronto.org
    Website of Epilepsy Toronto, a non-profit organization dedicated to the promotion of independence and optimal quality of life for all people with epilepsy and their families.  They offer a range of epilepsy support services, information programs and education to the public.
  1. http://www.epipro.com
    Epilepsy & Brain Mapping Program: A comprehensive healthcare center in Pasadena, California, for treating adult and pediatric epilepsy and other neurological disorders with seizures.
  1. http://familydoctor.org/214.xml
    Familydoctor.org, a website created by the American Academy of Family Physicians: General information on epilepsy.
  1. http://www.hsc.stonybrook.edu
    the website of the Long Island Comprehensive Epilepsy Center.
  1. http://www.naec-epilepsy.org
    the website of the National Association of Epilepsy Centers.  Find a comprehensive epilepsy center near you!
  1. http://www.neuro.wustl.edu/epilepsy/
    Epilepsy information and local resource centers in St. Loius, MO.
  1. http://www.nichcy.org/pubs/factshe/fs6txt.htm
    National Dissemination Center for Children with Disabilities: Epilepsy information and resources.
  1. http://www.nyuepilepsy.org
    Website of the NYU Comprehensive Epilepsy Center, the largest epilepsy center in the United States.  The Center offers testing, evaluation, screening, treatment, drug trials, alternative therapies, and surgical intervention for children, adolescents, and adults with all forms of epilepsy.
  1. http://www.nyuepilepsy.org/cec/
    New York University-Mount Sinai Comprehensive Epilepsy Center website.  Information and useful links.  The center includes a special program for people with tuberous sclerosis.
  1. http://www.nyufaces.org
    the website of Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.).  f.a.c.e.s. is an epilepsy organization that funds epilepsy research, education and awareness, and community building events for people with epilepsy.
  1. http://www.paceusa.org
    Parents Against Childhood Epilepsy is an organization that provides support for parents of children with epilepsy.  It features information regarding fundraising efforts in support of advances in medical research of epilepsy.
  1. http://specialchildren.about.com/cs/epilepsy/
    A list of epilepsy websites primarily for parents of children with epilepsy.
  1. http://pppl.tblc.org/sesweb/
    Suncoast Epilepsy Association: A Florida, non-profit organization that provides services to individuals with epilepsy in Pinellas and Pasco Counties.
  2. http://www.4pep.org
    The Pediatric Epilepsy Project at UCLA (PEP) was formed with a single, all-important mission: to raise funds, provide financial support and increase community awareness to help sustain the Division of Pediatric Neurology at UCLA.
  3. http://library.thinkquest.org/J001619/
    "Growing Up with Epilepsy" is a ThinkQuest website created by two young, gifted students with their teacher as their coach.
  1. http://www.bgsm.edu/bgsm/surg-sci/ns/epilepsy.html
    Wake Forest University School of Medicine, Winston-Salem, North Carolina, and Department of Neurosurgery: Contains general facts on epilepsy along with links to numerous websites for the epilepsy community of Wake Forest, as well as, various other sites containing helpful information on epilepsy.
  1. http://faculty.washington.edu/chudler/epi.html
    University of Washington: Professor's website containing epilepsy information and resources.
  1. http://www.bbc.co.uk/health/epilepsy
    A UK website with information on epilepsy and local resources for UK residents living with epilepsy. 
  1. http://www.bcepilepsy.com
    The BC Epilepsy Society is a non-profit, charitable organization dedicated to serving the British Columbians living with epilepsy and their families.
  1. http://www.epilepsiemuseum.de
    A German online museum that features artwork, history, and virtual tours.
  1. http://www.epilepsy.ca
    the website for Epilepsy Canada, featuring information on Canadian resources as well as general facts.  Also includes "Kidz Korner" with reassuring explanations for children.
  1. http://www.epilepsyontario.org
    Epilepsy Ontario: A website with information on epilepsy and support and volunteer opportunities for the local Ontario epilepsy community.
  1. http://www.epilepsy.org.au
    Epilepsy Association Australia: A growing site with information offered separately for adults, children, and teens.  Good general information for everyone and offers of many services for people in Australia.
  1. http://www.epilepsy.org.uk
    the website of Epilepsy Action, the working name of the British Epilepsy Association.
  1. http://www.epilepsysupport.org.uk/
    Epilepsy Support: A British site offering patient-to-patient community support.
  1. http://www.epinet.org.au
    The website of the Epilepsy Foundation of Victoria, Australia.  You can participate in rating the websites included in the interesting list of links here, including some in other languages.  Also some good practical tips. 
  1. http://www.ibe-epilepsy.org
    the website of the International Bureau for Epilepsy, a European-based group dedicated to improving the non-medical aspects of life with epilepsy around the world.  The site also includes links to groups in many countries.
  1. http://www.ilae-epilepsy.org
    International League Against Epilepsy: A preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by epilepsy.  This website contains plenty of helpful information on epilepsy.