Community Forum


Welcome to our community forums, full of support for people with epilepsy and their caregivers, including tons of advice and information on how to live a happy, healthy and productive life with epilepsy. Please register if you’d like to take part.

Directions to Register:

  1. Registered? If you haven’t registered on our site yet as a user then click the register bottom below.  Create a user name and provide your email address to register.
  2. To log in: Provide your username and password and click the log in button.
  3. And that’s it! You’re now a member of the epilepsy community and you can participate in all our discussions.
Please or Register to create posts and topics.

How can I become an epilepsy advocate?

Where can I go to find information on how to become an epilepsy advocate?

Aicardi Syndrome Foundation

American Clinical Neurophysiology Society (ACNS)

American Epilepsy Society (AES)

Brain Recovery Project: Childhood Epilepsy Surgery Foundation

Center for Disease Control and Prevention (CDC)

Charlie Foundation

Citizens United for Research in Epilepsy (CURE)

Danny Did Foundation

Dravet Syndrome Foundation

Dup 15q Alliance

Epilepsy Foundation (EF)

Finding a Cure Against Epilepsy and Seizures (FACES)

Health Resources & Services Administration (HRSA)

Hemispherectomy Foundation

HHV-6 Foundation

Hope for Harper

Hope for Hypothalamic Hamartomas (HH)

International Foundation for CDKL5 Research

International League Against Epilepsy (ILAE)

Intractable Childhood Epilepsy (ICE) Alliance

Lennox-Gastaut Syndrome (LGS) Foundation

My Epilepsy Story

National Association of Epilepsy Centers (NAEC)

National Institute of Neurological Disorders and Stroke (NINDS)

PCDH19 Alliance

Phelen-McDermid Syndrome Foundation (PMSF)

Physician-Parent-Caregivers (PPC)

Polymicrogyria (PMG) Awareness Organization, Inc.

RE Children's Project

Ring14 USA Outreach, Inc.

Seizure Tracker


The Anita Kaufmann Foundation

Tuberous Sclerosis Alliance

Veterans Administration (VA) Epilepsy Centers of Excellence